Earl often blogs online about celiac awareness as it relates to his biking trips, with several thousand people following his trips each time. Not only do his cross country bike trips raise awareness of the disease, but it shows other Celiacs that even the hardest of activities is still well within their reach.
Jack Hodges, a lifelong friend of Earl Ley, was one of the hundreds of friends and family members tracking Earl's progress, and commented on Earl's positive nature playing a role in his recovery. "Earl is one of those guys who is always looking for the positive aspects of life. I would bet Earl will tell you that the suffering he is going through right now is worth it if he raises more awareness for the disease and helped others think about getting diagnosed. Even in this time of near-tragedy I am sure he hopes the silver lining will appear. Regardless, we pray for a speedy recovery."
Celiac disease is an autoimmune disorder of the small bowel that occurs in genetically predisposed individuals in all age groups after early infancy. Symptoms may include diarrhea, failure to thrive (in children) and fatigue, but these may be absent and associated symptoms in all other organ systems have been described. It affects approximately 1% of Caucasian populations, though it is significantly underdiagnosed. A growing portion of diagnoses are being made in asymptomatic persons as a result of increasing screening. Celiac disease is caused by an abnormal reaction to gliadin, a gluten protein found in wheat (and similar proteins in barley and rye). Upon exposure to gliadin, the body's immune system cross-reacts with the enzyme tissue transglutaminase, causing a inflammatory reaction that leads to flattening of the lining the small intestine, which interferes with the absorption of nutrients. The only effective treatment is a diet, lifelong in principle, from which gluten is absent.
Earl Ley is a aeronautical enthusiast, triathlete, and cross country biker. He is also a respected deacon and elder at the First Baptist Church of Lake Hills (FBLH), and along with his wife Nell, donates countless hours each year in the community. The Seattle, Celiac, FBLH, and Iowa communities are all hoping for a speedy recovery for Earl. Anyone wanting to wish Earl well, please send words of encouragement to: earl.ley@comcast.net.
Contact:
Brian Hodges
Celiac Sprue Association
Pella, Iowa
briandhodges@
http://www.csaceliacs.org/
