Spinal Muscular Atrophy Nonprofit FightSMA Offers Free Webcast of Annual SMA Conference

PR Log (Press Release) – Apr 16, 2009 – (Richmond, VA) – Traveling with a sick child is always difficult, even when the trip in question involves learning more about the child’s illness.  That difficulty has only been amplified by the current state of the economy.  For that reason, Fight SMA (http://www.fightsma.org) is providing a free live webcast of two seminars from this year’s Family and Friends Annual Spinal Muscular Atrophy Conference in Washington D.C.

Spinal Muscular Atrophy (SMA) is the leading genetic killer of children under two.  Fight SMA is an international nonprofit organization dedicated to finding a treatment or cure for this killer.  

The Families and Friends Conference, which is part of the annual families and researchers conference called “The Good Fight”, allows families the opportunity to meet and learn from prominent scientists who are researching SMA.  It will be held at the L'Enfant Plaza Hotel on April 27 and 28, 2009.  The webcast will allow those not attending the event to view the two seminars on April 27: the Basic Science Update (5:00 p.m. to 6:00 p.m. ET) and the Thriving with SMA Panel (6:30 p.m. to 8:15 p.m. ET).  

A limited number of spaces are available for the webcast on a first come, first serve basis. If you would like to take advantage of this opportunity and sign up for one of the spaces, please email Heather Lennon by April 23rd.

For more information on the conference, please visit http://www.fightsma.org/index.php?annual_meeting_2009 .  To reserve your webcast reservation, please email Heather Lennon at heatherlennon@fightsma.com.

About Fight SMA
FightSMA is a 501c3 nonprofit corporation, organized in 1991 to strategically accelerate research for a treatment and a cure for spinal muscular atrophy (SMA), the leading genetic cause of infant death.  For more information, please visit www.fightsma.org.