Spinal Muscular Atrophy - Fight SMA
Albuquerque, New Mexico (April 12, 2007) - Mothers fighting on behalf of their children can be unstoppable. Erin Weisner of Albuquerque, New Mexico is such a mother, and it's because of her hard work that people all over her area are learning about spinal muscular atrophy (SMA) via a series of billboards.
Ms. Weisner's daughter, Desiree, has spinal muscular atrophy (http://www.fightsma.org), a neuromuscular disease that kills more children under two than any other genetic disorder. To battle the disease, Ms. Weisner founded Desiree's Buddies / Fight SMA Southwest, an Albuquerque-
Six months ago, Ms. Weisner went to her local office of Lamar Outdoor Advertising and asked for a price quote from the company to put up billboards to inform people about the deadly disease. She told the sales manager Desiree's story and invited him to learn about SMA. In the end, Lamar agreed to sell Desiree's Buddies 20 billboards for the next several months for a small fraction of the normal cost.
"We're thankful to Lamar for everything they're doing to help us," said Ms. Weisner. "Billboards are a great way to get the word out, and I hope people will see them, take the time to visit the Fight SMA website, and get involved."
The billboards feature a simple black background with white block lettering. They inform people viewing them that, "Spinal muscular atrophy kills more babies than any other genetic disease."
To view an image of one of the billboards, go to the Desiree's Buddies/Fight SMA Southwest chapter page: http://www.fightsma.org/
About Fight SMA
Headquartered in Richmond, VA, Fight SMA (also known as Andrew's Buddies) is an international nonprofit group dedicated to accelerating research for a treatment or a cure for spinal muscular atrophy (SMA), a neuromuscular disorder that kills more babies than any other genetic disease. For more information on spinal muscular atrophy and Fight SMA, please visit http://www.fightsma.org. The latest SMA news and research information is available at the Spinal Muscular Atrophy Blog by Fight SMA, at http://www.fightsma.org/
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Photo:
http://www.prlog.org/
